24/05/2023

New Guide To Support Parent Of Children With Disabilities

A new guide on supporting parent of children with disabilities has been published by the Children and Young People's Strategic Partnership (CYPSP).

Produced in association with parents of children with disabilities, the new publication, titled 'A Guide To Help You On Your Journey Through Disability/Additional Needs', provides information, support and services for those with disabilities from birth through to adulthood. The event took place recently at the Long Gallery in Stormont and was officially launched by actor James Martin, star of award-winning BAFTA and Oscar film 'An Irish Goodbye.'

In association with Barnardo's PosAbility Group, a supporting booklet titled 'All about Me' has been produced by CYPSP.

This is a template that will hold information on the person with additional needs/disability, providing key information on their personal details. For example, diet and allergies; medical information; likes and dislikes; therapy and personal care, equipment used and any further information relevant, which the child/young person can take with them when attending e.g. a youth club, school, health appointment, afterschool activity, when with childminders and other family members who help care for them.

Aidan Dawson, Chief Executive, Public Health Agency and Chair of CYPSP said: "I am delighted to endorse this resource. Co-production with parents, children, families and the strengthening of multi-agency early intervention is fundamental to the development and implementation of CYPSP Strategic Planning.

"This resource co-produced by parents for parents is an excellent example of partnership working. It is our hope that, the provision of information and advice contained in this resource, will benefit parents starting on their own journey through disability, as well as those navigating structures and systems at key points in their children's lives."

Ciara McKillop, Deputy Director of Social Services in SPPG, Department of Health said: "This is an important and timely resource co-produced with CYPSP. The guidance and signposting for parents of children with disability begins to address a number of objectives set out in both the Regional Autism Strategy and the forthcoming Regional Disability Framework and will be of enormous benefit to parents, children and young people."

CYPSP worked with parents from across Northern Ireland, community, voluntary and other statutory agencies to identify key information for the publication is based on the guidance provided by parents through their lived experience.


Related Northern Ireland News Stories
Click here for the latest headlines.

20 November 2024
£17m To Support Pensioners Affected By Winter Fuel Payment Changes
Communities Minister Gordon Lyons has announced a £17 million fund to support pensioners who have lost eligibility for the Winter Fuel Payment due to recent UK government changes. The one-off £100 payment will be automatically issued to an estimated 250,000 pensioners in around 170,000 households before the end of March 2025.
15 November 2024
New Pathway To Support Young People With Diabetes
Health Minister Mike Nesbitt has welcomed the launch of a new Regional Young Adults' Progression Pathway designed to support young people with Type 1 diabetes as they transition to adult services.
27 October 2003
One child in four being brought up by lone parent
One child in four in Northern Ireland is being brought up by a lone parent and is twice as likely to be poor as a child from a two parent family, new research has revealed.
20 August 2024
Extend Child Benefit For Your Teen By 31 August
Parents have less than two weeks to tell HM Revenue and Customs (HMRC) their 16-19 year-old is continuing education or training, or their Child Benefit payments will stop. Hundreds of thousands of teenagers will decide on their future this week as they receive their GCSE results on Thursday (22 August 2024).
13 May 2024
Every Child Deserves Access To An Integrated Education – Alliance
Every parent deserves access to an integrated education (IE) for their child, the Alliance party has said, calling for "much more" to be done by the Department of Education (DoE) in terms of delivering on pledges made around IE provision in the Integrated Education Act.