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01/12/2014
Barriers Prevent Dementia Patients From Accessing High-Quality Care
The barriers preventing people with dementia from accessing high-quality care at the end of life in England have been revealed in a report by Marie Curie and the Alzheimer's Society.
The number of people affected by dementia in the UK is thought to reach 850,000 by 2015. By 2030, the proportion of the UK aged over 85 is expected to double.
Living and Dying with Dementia – Barriers to Care, addresses the often overlooked final stage of dementia – a progressive, terminal illness. It highlights that dementia is often not recognised as a terminal diagnosis, which can lead to poor access to care, inconsistent quality of care and inadequate pain management.
The report draws on research from across the UK and particularly from University College London (UCL), as well as findings from health and social care services.
Phil McCarvill, Head of Policy and Public Affairs, at Marie Curie said: "End of life care for people with dementia remains a hidden aspect of health and social care in England so it is vital that we shine a light on the final stages of dementia to improve care and support for people and their families.
"I know from the personal experience of caring for my father that people with dementia have very specific needs. All too often, services do not respond to the needs of the individual. That is why are calling on a number of organisations to work with Marie Curie and Alzheimer's Society to improve care and support for people with dementia at the end of life."
(CD/JP)
The number of people affected by dementia in the UK is thought to reach 850,000 by 2015. By 2030, the proportion of the UK aged over 85 is expected to double.
Living and Dying with Dementia – Barriers to Care, addresses the often overlooked final stage of dementia – a progressive, terminal illness. It highlights that dementia is often not recognised as a terminal diagnosis, which can lead to poor access to care, inconsistent quality of care and inadequate pain management.
The report draws on research from across the UK and particularly from University College London (UCL), as well as findings from health and social care services.
Phil McCarvill, Head of Policy and Public Affairs, at Marie Curie said: "End of life care for people with dementia remains a hidden aspect of health and social care in England so it is vital that we shine a light on the final stages of dementia to improve care and support for people and their families.
"I know from the personal experience of caring for my father that people with dementia have very specific needs. All too often, services do not respond to the needs of the individual. That is why are calling on a number of organisations to work with Marie Curie and Alzheimer's Society to improve care and support for people with dementia at the end of life."
(CD/JP)
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